We met with Samuel's neurosurgeon this morning after learning two weeks ago today that he has a Type 1 Chiari Malformation and a Pineal Gland Cyst. His symptoms began in January with headaches and have since progressed this month to dizziness, nausea, tingling/numbness in hands and feet, itching, weakness, etc. After a spine MRI on March 13th, we were to learn the results.
Thankfully, Samuel's spinal cord is normal and has not been affected by the malformation in his brain! There has been no tethering or appearance of cysts.
From this point, we will continue to monitor and journal his symptoms over the next six weeks to provide the neurosurgeon the data needed to determine whether a Chiari decompression surgery is needed in Samuel's case.
In the meantime, we will visit a ophthalmologist and neurologist to see if they can provide further details or answers regarding Samuel's symptoms. We will meet back with the neurosurgeon in six weeks. Pray for continued grace through the daily struggle, adequate rest, and wisdom as we schedule appointments, log his symptoms, and determine whether surgery is needed at this time.
We will communicate from this point forward on this blog to keep you updated and provide you with specific ways on how you can pray for our family.
Please respect that we are shepherding our children through this process and ask that you refrain from speaking about it to them.
http://jennarjohnson.blogspot.com/2015/03/seeing-through-suffering.html
http://jennarjohnson.blogspot.com/2015/03/seeing-through-suffering.html
2 comments:
Praying for Samuel and mommy and daddy too!
Thank you Jenna for the update. So glad the spinal Mri was normal. Trusting in God's wisdom to provide guidance. Love you all! ~ Jill
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